Tuesday, March 20, 2012
running for a cause
she said that tics are very common in boys especially around 6 or 7 years old. it will come in waves. but it should go away.
they stuck around. sometimes they were big and sometimes they were small. we also started noticing some compulsive behavior sniffing things, wanting to touch things on the stove, doing things in a numbered fashion. it was bothersome to have to see it over and over. and we would get frustrated not really knowing what was causing them.
i remember asking him if he noticed the tics. he said, "yes, but it's something that my body wants to do."
every time we mentioned it to the dr. she said they were common. but if we noticed vocal tics that lasted more than six months we should let her know. it would require more investigation.
after putting it off and hoping for the best it was time to see a psychiatrist for an official diagnosis and maybe some help. the dr. talked to us about his symptoms, his behaviors and how he was doing in school. he talked to jordan about his tics, his friendships and his feelings about what was happening.
in the end the dr. said there really wasn't anything we should do. maybe some breathing exercises to calm his anxiety, watch his ocd and if we felt it was causing problems, which it wasn't, to bring him back. there was no need for medication.
i remember saying, "oh wow, we thought it might be tourettes."
and the psychiatrist saying, "it is."
yes, he has tourettes, but it's mild and he's doing great and it will get better.
and that was that. we left the office with an answer. maybe not the one we were hoping for, but it actually didn't seem so bad.
we've already been through a lot with him.
jordan had amblyopia and had to patch his eye.
he had surgery to remove a bone in the roof of his mouth.
he has hashimoto's disease and has to take medication everyday.
he was almost born at 24 weeks.
but he made it through.
so, we didn't cry.
we didn't get angry.
we just moved on.
what else could we do? he was in the best school where we knew he was cared for and they would intervene if any of the kids every teased him or made him feel bad. jordan was aware of his tics and knew that it didn't make him weird.
he told me once that he wished he didn't have the tics. so do i. but if that's the worst of his problems, we'll take it.
and he has tourette syndrome.
but that doesn't change a thing about who he is.
on may 12 i am running the santa inez 1/2 marathon. i am choosing to run to raise money for the tourette syndrome association. you can read more about the organization here. and you can sponsor me in my run here.
thanks for letting me share our story.